FND Events
Monday -Treatment
Recording of Live Webinar Dr Kathrin LaFaver
Frazer Rehab Institute Luncheon 12pm (Eastern)
Stanford Community Event Stanford Health Library 5:30 pm (Pacific)
Wolfson Rehab Unit, Roehampton activities throughout week
Tuesday-Research
Wednesday-Family/Carers
Live Webinar Professor Jon Stone
Thursday- FND International
Friday- A New Normal
Spread Awareness
Share the Awareness Day Flyer
Help others become #FNDaware by printing or emailing the Awareness Day flyer and sharing it with healthcare professionals and/or the public. Then, don’t forget to share your experience on social media using #FNDaware!
Download Materials
Register for Webinar
Watch a pre-recorded webinar
Clare Nicholson – FND and Occupational Therapy
Chris Symeon – Treatment, Wolfson Clinic
Brad Hayhow – Treatment, Perth Australia
Glenn Nielsen – Physio4FMD trial (TBA)
Share your story
Tips on getting your story published:
- Decide which section of the newspaper would be most interested in your story. Most media forms have a health section or think how your story relates to other sections.
- Become familiar with the type of stories the news source typically reports on. Are you a good fit for their agenda?
- Be factual. If you are not sure your information is accurate or if it is an opinion, then, present it as such.
- Be prepared with your info and any info you want to provide (FND Hope Media Kit, Press Release).
- Brevity is key. Short compelling stories gain the most attraction. Don’t get caught up in the details.
- Provide a photo or prepare to be photographed.
Your information:
Your Name: Address: Contact details: Answer the following questions:
• What were you and your life like before developing FND symptoms? (30 words or less)
• When did your functional symptoms start? (20 words or less) How long did it take to be diagnosed? (25 words or less)
• What are your symptoms? (You can group symptoms together i.e. involuntary movements, cognitive impairment, mobility)
• How has FND impacted your life and those around you? (50 words or less)
• What do you want others to know or understand about FND? (50 words or less)
• Why is awareness for FND important to you? (25 words or less)
Raising Funds for Hope
Awareness T-Shirts
Make A Donation
Help us continue to provide FND resources such as:
FNDHOPE.ORG
FND Scientific Registry for Medical Research
Webinars with FND Specialists and more!
Hold an FND Event
- Decide what type of event you want to do (Need some ideas?)
- Fill out the event form
- Share your event on social media using #LetsTalkFND

Download World FND Week flyer -A4 







