#FNDandUS - FND Hope International

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FND Hope International

FND Hope UK

Join Our #FNDandUS Campaign

“We’re giving them a voice and we hope that you will listen!”

-Lorraine Kelly OBE FND Hope UK Patron

The goal of our #FNDandUS campaign is to share inspiring patient stories from our community to help raise awareness of Functional Neurological Disorder, the most common condition you have most likely never heard of! Through our awareness and education efforts, we are putting resources into the hands of those in need. FNDandUS is about a community, its about sharing the struggles that people diagnosed with Functional Neurological Disorder have and the hope of people managing their symptoms. It about families who help care and support US, its about friends who give US a lending ear.

FND Hope International, FND Hope US, FND Hope UK, FND Hope Canada, and FND Hope Australia are all committed to the health and well-being of those with functional symptoms. We have joined forces with others in a global network to advocate best practices for ethical patient-centered care for FND. We aim to change how functional symptoms are understood and defined globally and work in a concerted manner to advocate for the men, women, and children who have had their lives turned upside by physical and often debilitating functional symptoms. FND Hope and affiliates provide current information and dispel biased stereotypes and myths.

Functional Neurological Disorder (FND) is a problem with the functioning of the nervous system and how the brain and body send and receive signals. This causes a range of neurological symptoms such as seizures, weakness, paralysis and chronic pain.

FND has multiple causes and can be triggered by physical injury, psychological or other trauma to the brain and or body. This stops the nervous system working properly. The disruption to the signals is like letters being sent to the wrong address, despite having the correct label. To find out more about FND visit our webpage What is FND.

WHAT YOU NEED TO DO

We want to show what it’s like to live with Functional Neurological Disorder (FND) and some of the challenges that can present. You don’t need any fancy video skills – just your phone and your story! Here’s what we need: Record short videos of snippets of your daily life. (5 minutes max) Share moments that show the ups and downs. Tell us how you tackle the challenges. We’ll take care of the rest: We’ll put the videos together. We’ll make them look nice and clear. We’ll add some words to explain things.

Please can we ask that videos of Functional Seizures or any other FND symptoms are NOT recorded as these may trigger symptoms in others diagnosed with FND. Thank you for your consideration.

Please email your videos or to ask any further questions to fndhopeuk@fndhope.org

2022