FND Hope US
UNITED STATES OF AMERICA
Find more information about upcoming FND Hope events or programs on our Events Calendar!
Presented by FND Hope US in collaboration with: Movement Med
Our Movement Class will be taking a break until October, but you can meet the Movement Med Instructors at the 2021 Virtual Non-Epileptic/Functional Seizure Conference!
Shane Rhoads and Erica Mott will be giving a presentation on how movement can help you manage and decrease your daily symptoms.
2021 Virtual NES/Functional Seizure Conference
Join us for a two-day conference featuring presentations, panel, round table and open discussions on topics related to functional seizures (FS), also referred to as non-epileptic seizures (NES). Hear from clinicians, researchers, patients and caregivers (and even engage in the discussion yourself!) to learn more about functional seizures and how we are hoping to improve the lives of those affected.
Dates: October 9th and 10th
Times: 9AM to 4PM Eastern Daylight Time (UTC-4)
Location: Virtual, on Zoom
September 18, 2019, FND Hope delegates Sara and Alana joined others from across the nation to Rally for Medical Research. Both advocated for FND on Capitol Hill.
Sara on behalf of all FND Warriors shows her pledge for research and helping others become #FNDaware.
September 19, 2019, kicked off the first in-person patient meeting at the Cleveland Clinic. Approximately 20 patients and family members gathered to talk FND. Cleveland patients were the first to receive the new FND Patient Booklet. Great discussions were had and new friendships emerged. The event was a great way for individuals with FND, their families and medical professionals to support one another.
September 19, 2019, FND Hope International ‘s CEO/ Founder Bridget Mildon spoke to attendees highlighting how perspectives of FND have influenced how others approach the illness and those with the diagnosis. Mildon shared the lived experiences of several patients and their barriers to care. Mildon continued to emphasize how changing perspective could potentially improve patient care.