September 18, 2019, FND Hope delegates Sara and Alana joined others from across the nation to Rally for Medical Research. Both advocated for FND on Capitol Hill.

September 19, 2019, kicked off the first in-person patient meeting at the Cleveland Clinic. Approximately 20 patients and family members gathered to talk FND. Cleveland patients were the first to receive the new FND Patient Booklet. Great discussions were had and new friendships emerged. The event was a great way for individuals with FND, their families and medical professionals to support one another.