World FND Month
This April Join Us to Spread FND Awareness
Don’t forget to share your experience on social media using #FNDaware | #FND2020 | #LetsTalkFND
Light the World for FND
Light Up in APRIL for World FND Month
Request to have your local monument, building or street art to be light up Orange and/or blue
- Google the property you wish to ask Light Up.
- Many places will have an online Lighting Request Form for you to complete. Refer to the Light Up Request Letter for details
- When an online Lighting Request Form is not available, feel free to DOWNLOAD the Light Up Request Letter to send to the appropriate authorities along with the FND Hope letter of support..
- Keep us informed of the places you have sent a request. Send the details including the contact name and their email address to firstname.lastname@example.org to ensure FND Hope can follow up on your behalf.
Let’s get communities talking about World FND Month!
#FNDaware SOCIAL MEDIA CHALLENGE
An easy way to get involved in World FND Month is by participating in the #FNDaware social media challenge. Just follow the 4 steps below;
Print or display on a laptop, Ipad, Notepad etc, making the sign fit full screen
- Take a photo of yourself holding the ‘I am ‘#FNDaware’ sign
- Post the photo to all your social media platforms
- Copy and Paste the following to write on your post;
I Am #FNDaware. Are you?
Please support World FND Month, April 2020 by sharing my post on your social media, then, go to fndhope.org and ‘Be Part of the Global FND Movement!’
Help others become #FNDaware by printing or emailing the World FND Month awareness flyer and sharing it with healthcare professionals and /or the public. Then, don’t forget to share your experience on social media using hashtags.
Hang a World FND Month poster in your office, school, or local community space. Share videos, infographics, fact sheets, or other resources with your community!
Share your story
Contact the Media
Publish it at the Mighty
Tips on getting your story published:
- Decide which section of the newspaper would be most interested in your story. Most media forms have a health section or think how your story relates to other sections.
- Become familiar with the type of stories the news source typically reports on. Are you a good fit for their agenda?
- Be factual. If you are not sure your information is accurate or if it is an opinion, then, present it as such.
- Be prepared with your info and any info you want to provide (FND Hope Media Kit, Press Release).
- Brevity is key. Short compelling stories gain the most attraction. Don’t get caught up in the details.
- Provide a photo or prepare to be photographed.
Your Name: Address: Contact details: Answer the following questions:
• What were you and your life like before developing FND symptoms? (30 words or less)
• When did your functional symptoms start? (20 words or less) How long did it take to be diagnosed? (25 words or less)
• What are your symptoms? (You can group symptoms together i.e. involuntary movements, cognitive impairment, mobility)
• How has FND impacted your life and those around you? (50 words or less)
• What do you want others to know or understand about FND? (50 words or less)
• Why is awareness for FND important to you? (25 words or less)