FND HOPE US CONTACT INFORMATION:
FND Hope US
PO Box 783
Salmon, ID 83467
e: contact@fndhope.org
April 30, 2012, FND Hope was created to unite people diagnosed with Functional Neurological Disorder [FND]. Our website was just the beginning of what later became the first registered charity in the world advocating for those with functional symptoms. Content for FND Hope is written by patients, caregivers, advocates and doctors/researchers who come together to promote better treatment and care for those battling FND.
FND Hope Inc is a 501c3 registered charity in the United States. FND Hope US is committed to the health and well-being of those with functional symptoms in the United States. We have joined forces with others in a global network to advocate best practices for ethical patient-centered care for FND. We aim to change how functional symptoms are understood and defined globally and work in a concerted manner to advocate for the men, women, and children who have had their lives turned upside down by physical and often debilitating functional symptoms.
Your insights are crucial in helping us tailor our services and offerings to better meet the needs of those affected by Functional Neurological Disorders (FND) in the United States. This survey is your chance to influence the direction of FND Hope US for the next few years, ensuring that our organization aligns with the priorities and preferences of our community. Let your voice be heard – participate in the FND Hope US Community Survey from December 4th – 15th.
To enhance operations within the United States, FND Hope is introducing a new US Board of Directors. This strategic move aims to make our decision-making more efficient and sharpen our focus on US initiatives. FND Hope US is excited to welcome: Meagan Watson, Michele Price, Kim Kamen, Jilani Zeribi, Dr. Shilpa Chitnis, Ilene Engle, and Angela McKellip.
FND Hope US offers weekly options for peer support, educational workshops, classes, and more.
Advocacy involves promoting the interests or cause of someone or a group of people. An advocate is a person who argues for, recommends, or supports a cause or policy. FND Hope supports advocacy efforts for funding, research, patient support, and services specific to Functional Neurological Disorder. Below are a few resources to help the FND community in local, state, or national systems advocacy. If you have additional questions regarding advocacy efforts, please email FND Hope US Director, Amanda Hopper at amanda@fndhope.org.
On October 9th and 10th, 2021, FND Hope hosted a two-day conference featuring presentations, panel, round table and open discussions on topics related to functional seizures (FS), also referred to as non-epileptic seizures (NES). Thank you to all those who attended the conference!
Please check the NES Conference Playlist at the FND Hope YouTube Channel for access to the recordings.
© [2012-2021] FND Hope