Countdown to International FND Awareness Week
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How can you get involved?
Take the #LetsTalkFND Pledge! It's as easy as 1-2-3!
#LetsTalkFND Pledge
1. Spread Awareness
Share the Awareness Day Flyer
Make someone FND aware by printing or emailing the Awareness Day flyer and sharing it with healthcare professionals and/or the public. Then, dont forget to share your experience on social media using #LetsTalkFND!
International FND Day Awareness Flyer
A4 Download Image (jpeg)2. Share your story
Contact the Media
Tips on getting your story published
Tips on getting your story published:
- Decide which section of the newspaper would be most interested in your story. Most media forms have a health section or think how your story relates to other sections.
- Become familiar with the type of stories the news source typically reports on. Are you a good fit for their agenda?
- Be factual. If you are not sure your information is accurate or if it is an opinion, then, present it as such.
- Be prepared with your info and any info you want to provide (FND Hope Media Kit, Press Release).
- Brevity is key. Short compelling stories gain the most attraction. Don’t get caught up in the details.
- Provide a photo or prepare to be photographed.
Writing Your Information
Your information:
Your Name: Address: Contact details: Answer the following questions:
• What were you and your life like before developing FND symptoms? (30 words or less)
• When did your functional symptoms start? (20 words or less) How long did it take to be diagnosed? (25 words or less)
• What are your symptoms? (You can group symptoms together i.e. involuntary movements, cognitive impairment, mobility)
• How has FND impacted your life and those around you? (50 words or less)
• What do you want others to know or understand about FND? (50 words or less)
• Why is awareness for FND important to you? (25 words or less)
FND Press Kit
Share on Facebook
3. Fundraising for Hope
Help us continue to provide FND resources such as:
fndhope.org
FND Scientific Registry for Medical Research
Webinars with FND Specialists and more!
Hold an FND Event
FND Event
Hold your own event
- Decide what type of event you want to do (Need some ideas?)
- Fill out the event form
- Share your event on social media using #LetsTalkFND
Make A Donation
Direct Donations
Donate to FND Hope | FND Hope UK | FND Hope Australia DONATE HEREVisit our website to see the convient ways you can donate by check or credit/ bank card via Facebook or Pay Pal. (You do not need a Pay Pal account.)
Contact 5 People Who Will Make a Donation
Direct Donations
Donate to FND Hope | FND Hope UK | FND Hope Australia DONATE HEREVisit our website to see the convient ways you can donate by check or credit/ bank card via Facebook or Pay Pal. (You do not need a Pay Pal account.)
Fundraise on Facebook
Start a fundraise campaign on Facebook FND Hope Facebook FND Hope UK Facebook
Say Thank You
Don’t forget to tell your donors “Thank You”.
We will also email your donor pledges a “Thank You” if you forward us their name and email address to: donate@fndhope.org Subject: “Your name” – thank you
