World FND Month

Light up in April for World FND Month

Request to have your local monument, building, or street art to be light up Orange and/or blue

1. Google the property you wish to ask Light Up.
2. Many places will have an online Lighting Request Form for you to complete. Refer to the Light Up Request Letter for details
3. When an online Lighting Request Form is not available, feel free to DOWNLOAD the Light Up Request Letter to send to the appropriate authorities along with the FND Hope letter of support.
4. Keep us informed of the places you have sent a request. Send the details including the contact name and their email address to events@fndhope.org to ensure FND Hope can follow up on your behalf. 

Let’s get communities talking about World FND Month!

THE CHALLENGE – Turn FND Around Spreading Awareness!

Learn how one Functional Neurological Disorder (FND) symptom can affect you doing this experiment. Make sure to have your phone ready to film or photograph family and friends participating!

1. Spin around on the spot until ‘slightly’ dizzy.
2. Walk-in a straight line (counting steps).
3. Explain how you feel having less control of your balance.
4. Nominate 5 people to do the challenge by tagging them.
5. Upload the video to your social media. Copy and paste this.

WHAT IS FUNCTIONAL NEUROLOGICAL DISORDER (FND)?

FND is a problem with the nervous system and how the brain and the body send and receive signals. It can be as debilitating as Parkinson’s disease and MS and have many similar symptoms. Learn more at FNDHOPE.ORG

BALANCE – A balance disturbance causes you to feel unsteady when you are sitting, standing, reaching, bending, or walking. Balance occurs as the result of several body systems working together: the visual system (eyes), the vestibular system (ears), and proprioception (the body’s sense of where it is in space). When your balance is impaired, you have difficulty standing upright. You may stagger, fall or not be able to stand.

• Do this experiment in a safe environment. FND Hope takes no responsibility for any harm to participants while doing this.
• Do not take part if you have FND, are pregnant, or have any other health problems
• Encourage fellow FND Hope members by sharing your video with your FND Hope Peer groups

Calling all Bloggers/Vloggers/Podcasters and Social Influencers

FND Hope is giving Bloggers/Vloggers/Podcasters and Social Influencers an opportunity to be featured during this year’s World FND Month.

FND Hope has the largest online FND peer support community hosted on Facebook and HealthUnlocked. These forums are a great way to meet others and discuss FND. We want to give a shout-out to all the bloggers who share their experience of living with FND. V/Bloggers are an important part of FND advocacy and we encourage others to take the time to check out the list of v/blogs.

If you would like your V/blog/Instagram to be considered for sharing on our website’s section for Peer to Peer Support and to be shared on our social media when we are able, please fill out this application.

We screen applications to look for a variety of voices, stories, and content and will share those that may offer the most benefit in our determination.

PLEASE NOTE – If your content does not meet FND Hope’s legal guidelines, it will NOT be able to be published on any of FND Hope’s platforms.

Keeping our Family Functional Guidelines

Bloggers Application Link 

Be #FNDaware

An easy way to get involved in World FND Month is by participating in the #FNDaware social media challenge. Just follow the 4 steps below;

1. DOWNLOAD the ‘I Am #FNDaware’ Sign  Standard DOWNLOAD    A4 DOWNLOAD

      Print or display on a laptop, Ipad, Notepad, etc, making the sign fit fullscreen

2. Take a photo of yourself holding the ‘I am ‘#FNDaware’ sign
3. Post the photo to all your social media platforms
4. Copy and Paste the following to write on your post;

I Am #FNDaware. Are you?

 Please support World FND Month, April 2021 by sharing my post on your social media, then, go to fndhope.org and ‘Be Part of the Global FND Movement!’